Health professionals and students, family caregivers, friends of and affected individuals, and others interested in learning about dementia and quality care will benefit from completing the course. Led by Drs. Nancy Hodgson and Laura Gitlin, participants will acquire foundational knowledge in the care of persons with Alzheimer’s Disease and other neurocognitive disorders.
Vivre en étant atteint de démence : Impact sur les individus, les personnes qui s'occupent d'eux, les communautés et les sociétés
proposé par
Université Johns-Hopkins
Programme du cours : ce que vous apprendrez dans ce cours
Semaine
1About Dementia
In this module, we introduce learners to dementia. We present a socio-ecological framework for understanding the live experience of dementia and by which this course is organized. We discuss the global impact, pathophysiology, and stages of dementia.
6 vidéos (Total 49 min), 11 lectures, 3 quiz
6 vidéos
Module 1 Introduction45s
Alzheimer’s Disease A Brief History7 min
Dementia-The Challenge of Diagnosis5 min
New Approaches to the Diagnosis of Alzheimer's Disease10 min
Global Impact of Dementia20 min
11 lectures
History of Alois Alzheimer10 min
World Health Organization Dementia Fact Sheet10 min
The Pathophysiology of Alzheimer's Disease and Directions in Treatment (OPTIONAL)10 min
Inside the Brain: Unraveling the mystery of Alzheimer's disease (YouTube) (OPTIONAL)10 min
Alzheimer's Disease International: Diagnosis10 min
Alzheimer's Association: Recommendation to update diagnostic criteria10 min
The diagnosis of dementia due to Alzheimer’s disease: Recommendations from the National Institute on Aging-Alzheimer’s Association workgroups on diagnostic guidelines for Alzheimer's disease (OPTIONAL)10 min
Recommendations for the Diagnosis and Management of Alzheimer's Disease and Other Disorders Associated with Dementia: EFNS guideline (OPTIONAL)10 min
2009 World Alzheimer Report Executive Summary10 min
Dementia: International Comparisons (OPTIONAL)10 min
Dementia Care in 9 OECD Countries: A Comparative analysis (OPTIONAL)10 min
2 exercices pour s'entraîner
Myth Buster Quiz40 min
Week 1 Quiz40 min
Semaine
2Impact on the Person
In this module, we focus on the impact of dementia for individuals. You will learn about common unmet needs of persons with dementia as well as the impact of core clinical features such as behavioral and psychological symptoms. Also, you will learn ways to support quality of life of a person with dementia.
7 vidéos (Total 130 min), 10 lectures
7 vidéos
Personhood6 min
Potential Interventions Across the Disease Trajectory17 min
Identifying and Treating Behavioral Symptoms in Dementia32 min
Support the Person with Dementia: The Role of Meaningful Activities29 min
Palliative Care to Manage End Stage Dementia: A Patient-centered approach24 min
Medication Use in Dementia Care17 min
10 lectures
Personhood10 min
Personhood in a World of Forgetfulness: An Ethnography of the Self-Process Among Alzheimer's Patients (OPTIONAL)10 min
Managing Behavioral Symptoms in Dementia Using Nonpharmacologic Approaches: An Overview10 min
Activities10 min
International Perspectives on Nonpharmacological Best Practices for Dementia Family Caregivers: A Review (OPTIONAL)10 min
Dementia: a public health priority (OPTIONAL)10 min
Importance of national plans for Alzheimer’s disease and dementia (OPTIONAL)10 min
Late-Stage Caregiving10 min
Alzheimer's Disease: Help for Caregivers10 min
Hospice Care for Alzheimer's10 min
Semaine
3Caregiving and the Home Environment
In this module, we expand our lens to consider family caregivers’ needs. You will learn the psychosocial impact of caring for a person with dementia and the role of stress. We provide examples of how to reduce stress, use the physical environment to support care tasks and well-being, and examine the potential role of technologies to improve dementia care.
7 vidéos (Total 122 min), 12 lectures, 2 quiz
7 vidéos
Living with Dementia as a Family Caregiver22 min
Psychosocial Processes in Families Managing Dementia: The Stress response20 min
Using the Physical Environment to Support Quality of Life: Psychosocial environmental processese27 min
Home Safety - Part 115 min
Home Safety - Part 219 min
Summary and Future Challenges: The Role of Technology15 min
12 lectures
Caring for a person with dementia10 min
Dementia with Agitation (YouTube video)10 min
Rabins on Research: Is Alzheimer’s disease genetic? Do my children have to worry? (OPTIONAL)10 min
Late stage dementia home care: a caregiver from India shares her experiences (YouTube) (OPTIONAL)10 min
Extended Interview with Alzheimer's Caregiver, Ric Gomez (YouTube) (OPTIONAL)10 min
Stress Process Model for Individuals With Dementia10 min
Impact of the disease (OPTIONAL)10 min
Cultural Values and Caregiving: The Updated Sociocultural Stress and Coping Model (OPTIONAL)10 min
Correlates of quality of life for individuals with dementia living at home: the role of home environment, caregiver, and patient-related characteristics10 min
World Alzheimer Report 2013 Journey of Caring (OPTIONAL)10 min
Environmental Perspectives on Ageing10 min
Assistive technology - devices to help with everyday living10 min
2 exercices pour s'entraîner
Case Study Quiz2 min
Environmental Safety Checklist Assignment20 min
Semaine
4Module 4: Community Level
ln this module, we examine the community level. We discuss how the interprofessional team plays a key role in providing comprehensive dementia care. Also, we examine the concept of dementia-friendly communities and provide some examples from around the world.
4 vidéos (Total 60 min), 5 lectures, 2 quiz
4 vidéos
Assessing the Role of the Home and Community Environment in Supporting Families Living with Dementia14 min
Dementia Friendly Communities12 min
Using an Interprofessional Approach to Dementia Care32 min
5 lectures
Improving Quality of Life in Individuals with Dementia: The Role of Nonpharmacologic Approaches in Rehabilitation10 min
List of Alzheimer associations10 min
8 Pillars Model of Community Support (OPTIONAL)10 min
Dementia Care & Support (OPTIONAL)10 min
Dementia care in developing countries: The road ahead (OPTIONAL)10 min
2 exercices pour s'entraîner
Dementia Friendly Community Checklist Assignment20 min
IPE Quiz16 min
Enseignants
Nancy Hodgson, PhD, RN, FAAN
Adjunct InstructorJohns Hopkins University School of Nursing
Laura N. Gitlin, PhD
ProfessorJohns Hopkins University School of Nursing
À propos de Université Johns-Hopkins
The mission of The Johns Hopkins University is to educate its students and cultivate their capacity for life-long learning, to foster independent and original research, and to bring the benefits of discovery to the world.
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